自我管理教育对哮喘患儿生命质量的影响

目的通过对哮喘患儿及其家长的自我管理教育,使患儿的临床症状、药物需求量、肺功能和呼吸道反应性等方面产生明显改善同时,再采用哮喘儿童生命质量调查问卷（PAQLQ）,评估自我管理教育对哮喘患儿生命质量的影响,以期通过哮喘自我管理教育有效提高哮喘患儿的生命质量。方法将确诊为支气管哮喘的75例6～14岁的门诊及住院患儿随机分为教育组38例,对照组37例,采用中国版的PAQLQ,二组初诊时、0.5年后均作生命质量评估,并将二组教育前后问卷结果及二组间问卷结果进行比较。结果0.5年后教育组及对照组二组生命质量症状、活动、情感各方面得分及总得分均有显著提高,但教育组生命质量症状、活动、情感各方面得分及总得分均显著高于对照组（Pa〈0.01）。结论对哮喘患儿及其家长进行自我管理教育及生命质量评估能显著提高哮喘患儿的生命质量。

Effects of Self-Management Education on Quality of Life in Children with Asthma

Objective To study the effects of self-management education on quality of life in children with asthma.Methods Seventy-five out-patients and in-patients with asthma were randomlydivided into 2 groups.The educational group(38 cases)received the basic knowledge education of asthma and self-management,while the control group received only the basic knowledge education of asthma.A inquiry was conducted in all patients using a Chinese PAQLQ(pediatric asthma quality of life questionnaire)before and 6 months after the treatment.The correlation and difference between 2 groups were analyzed.Results There were no significant difference before the therapy.After 6 months's treatment,there were uptrends on scorecard in some fields in such as symptom,activity,emotion and the total score in all patients(P<0.01).Otherwise,the total scores and the score in some fields such as symptom,activity,emotion in the educational group were higher than those in the control group(P<0.01).Conclusion The self-management education to children with asthma and their parents can improve the quality of life.