Affiliation: | 1. Department of Neurology, Massachusetts General Hospital, Boston, Massachusetts, USA;2. Department of Speech, Language and Swallowing Disorders, Massachusetts General Hospital, Boston, Massachusetts, USA;3. Center for Rare Neurological Diseases, Massachusetts General Hospital, Boston, Massachusetts, USA;4. Division of Pediatric Nephrology, Department of Pediatrics and Communicable Diseases, University of Michigan School of Medicine, Ann Arbor, Michigan, USA;5. Department of Social Work, School of Health Sciences, Quinnipiac University, Hamden, Connecticut, USA;6. Cystinosis Adult Care Excellence Initiative, Reading, Massachusetts, USA;7. Center for Rare Neurological Diseases, Department of Neurology, Massachusetts General Hospital, Boston, Massachusetts, USA |