The needs and experiences of injured workers: a participatory research study

This paper reports on the findings of a participatory research study in which 290 injured workers in Ontario, Canada responded to a survey that was developed and administered by a group of university researchers in partnership with injured worker peer researchers. The objectives of the study were to gain a broad view of the needs and experiences of injured workers and to develop strategies for change. Findings indicated that many injured workers experience undue financial, emotional and physical hardship during the compensation, treatment and rehabilitation process. These hardships are experienced due to perceived lack of respect, insufficient information concerning rights and the return-to-work process, and limited opportunities for input into the medical or rehabilitation process. Recommendations for increasing the power of workers and creating a more supportive climate are included.     

A participatory evaluation framework in the establishment and implementation of transdisciplinary collaborative centers for health disparities research

ObjectiveWe describe the formulation and implementation of a participatory evaluation plan for three Transdisciplinary Collaborative Centers for Health Disparities Research funded by the National Institute of Minority Health and Health Disparities.MethodsAlthough different in scope of work, all three centers share a common goal of establishing sustainable centers in health disparities science in three priority areas – social determinants of health, men’s health research, and health policy research.ResultsThe logic model guides the process, impact, and outcome evaluation. Emphasis is placed on process evaluation in order to establish a “blue print” that can guide other efforts as well as assure that activities are being implemented as planned.ConclusionWe have learned three major lessons in this process: (1) Significant engagement, participation, and commitment of all involved is critical for the evaluation process; (2) Having a “roadmap” (logic model) and “directions” (evaluation worksheets) are instrumental in getting members from different backgrounds to follow the same path; and (3) Participation of the evaluator in the leadership and core meetings facilitates continuous feedback.     

An equality of condition framework for user involvement in mental health policy and planning: evidence from participatory action research

Discussions about user involvement in the mental health services tend to throw up four major areas of concern: the capacity of service users to participate, their lack of participation skills, the need for a positive organisational culture and the need for arenas of participation. This article presents evidence from participatory action research with Irish mental health service users which explored how they could more equally participate in advisory committees. Participants identified barriers to their equal participation due to unequal cultural, physical, mental and economic resources, time, power, ‘stigma’(prejudice) and lack of respect for their experiential knowledge and emotional expression. These barriers fall within the ‘equality of condition framework’ developed by Baker and colleagues. Enabling equal user involvement in strategic decision‐making requires more than arenas of participation – it requires comprehensively addressing service users’ structural disadvantages throughout the process of involvement.     

Reflections on doing participatory research in health: participation,method and power

The author has reflected on her experience in facilitating three participatory research (PR) projects to identify key issues surrounding participation, method and power. The three PR projects in health, all undertaken in the same region in southeast Australia, assessed the needs of women who have experienced breast cancer, evaluated an Indigenous healthy lifestyle programme and developed and documented a model of coordinated care by a consumer group. In particular, the three participatory projects suggested that participants do not always want to maximise their own participation and may prefer external researcher involvement – relationships, confidentiality, anonymity and time‐impacted perspectives of participation. In one study, quantitative methods were selected and time and previous knowledge of research shaped participants' selection of method. In the projects, power relations were complex and issues of negotiation, inclusion, quality of research, agendas, roles and integrity are discussed. The lessons learned here are that participatory researchers can be open to differing levels of participation and methods while also comfortable with sharing decision‐making in research, even if it alters the research outcome.     

Communication of results and utilization in participatory program evaluation

This paper explores the linkages between utilization and stakeholder participation in the evaluation process, specifically in the communication of results phase of evaluation. It is argued that key elements of a participatory evaluation process can be linked to meaningful and multiple forms of results utilization through cognitive and political uses of the evaluation process. Data from two small-scale participatory evaluations are used to support this argument.     

Women's health and HIV: experience from a sex workers' project in Calcutta

This article narrates an inspiring discovery for development professionals who are searching for ways to empower women to protect themselves, their partners and families from HIV infection. This was based on the experience of the author as she came across a movement of sex workers who successfully negotiated safe sex in the heart of Calcutta, India. Employing focus group discussions, informal interviews and home visits during 1999, the author discovered that a Sexually Transmitted Disease/HIV Intervention Project has been set up to promote disease control and condom distribution among these sex workers. Operating on three principles for its work--respect, recognition, and reliance, the program aims to create an impact on the sex workers themselves and their peers. Likewise, the need to build alliances with clients, training the police and forming the Durbar Mahila Samanvaya Committee were deemed as necessary. Several lessons were learned during the course of the research: use of stories and history to rally the community; retaining flexibility, meeting changing needs; using drama to promote communication; and negotiating with men and opposing patriarchy.     

Church-based organizing as participatory research: The northwest community organization and the pilsen resurrection project

Participatory research (PR) is a method of social investigation, an educational process and a process of collective action. Few examples of PR in the urban United States currently exist. Church-based community organizing’s process of systematically identifying values and concerns as a way of building relationships based on personal and social knowledge is fundamentally similar to the key characteristics of PR. Two examples of church-based organizing in inner city Chicago neighborhoods are the Northwest Community Organization and the Pilsen resurrection Project. Identification of such church-based organizing efforts as PR may help identify additional urban United States examples of PR, but also raises questions as to the role of the academic and the practical value of PR for community groups.     

Prediction model for the return to work of workers with injuries in Hong Kong

This study attempts to formulate a prediction model of return to work for a group of workers who have been suffering from chronic pain and physical injury while also being out of work in Hong Kong. The study used Case-based Reasoning (CBR) method, and compared the result with the statistical method of logistic regression model. The database of the algorithm of CBR was composed of 67 cases who were also used in the logistic regression model. The testing cases were 32 participants who had a similar background and characteristics to those in the database. The methods of setting constraints and Euclidean distance metric were used in CBR to search the closest cases to the trial case based on the matrix. The usefulness of the algorithm was tested on 32 new participants, and the accuracy of predicting return to work outcomes was 62.5%, which was no better than the 71.2% accuracy derived from the logistic regression model. The results of the study would enable us to have a better understanding of the CBR applied in the field of occupational rehabilitation by comparing with the conventional regression analysis. The findings would also shed light on the development of relevant interventions for the return-to-work process of these workers.     

Using participatory research in community consortia development and evaluation: Lessons from the beginning of a story

This article explores the first eighteen months of the development of a community-based consortium project that employs the methodology of participatory action research. Using the Community-Based Consortia Development (CBCD) framework to identify critical phase-specific issues, the author illustrates the applicability of lessons learned from the project to the utilization of the participatory philosophy and process for the empowerment of communities.     

The discovery of participatory research as a new scientific paradigm: Personal and intellectual accounts

The article presents considerations for the placing of participatory research in the practice of sociology. The changing conditions in contemporary society have compelled social scientists to rethink the way social theory has been conceptualized and has been practiced in relation to social change. Modernist social theory, of which sociology is a prime example, has been imbued with the biases of the Enlightenment that privilege the essentialized male rational actor set above the ordinary people. As a consequence it has produced narratives and practices that are not in the interest of the people, especially those who have been dominated and oppressed. In order to live up to the potential of sociology as a vehicle for the improvement of social conditions, it must include the interest and the wisdom of the people in its researching and theorizing activities. It is argued that participatory research provides an opportunity to follow this course in sociology. Participatory research, it is contended, will lead to a paradigm shift in the social sciences because it is based on an expanded conception of knowledge and because it changes the relationship between the researcher and the researched and between theory and practice. Arguments are drawn from the history of science, critical theory, and postmodernist and feminist critiques. Peter Park is currently on the faculty of the Fielding Institute.     

Rights to research: utilising the Convention on the Rights of Persons with Disabilities as an inclusive participatory action research tool

For those labelled disabled, disability rights are synonymous with human rights, not merely a sub-category. In this paper we consider disability rights in terms of the right of people labelled with learning difficulties to be actively involved in research. Examples from an inclusive participatory action research project undertaken in partnership with people labelled with learning difficulties demonstrate how the Convention on the Rights of Persons with Disabilities was operationalised using photo-voice to facilitate accessible research, analyse findings and promote social change.     

Using participatory and creative methods to facilitate emancipatory research with people facing multiple disadvantage: a role for health and care professionals

Participatory and creative research methods are a powerful tool for enabling active engagement in the research process of marginalised people. It can be particularly hard for people living with multiple disadvantage, such as disabled people from ethnic minority backgrounds, to access research projects that are relevant to their lived experience. This article argues that creative and participatory methods facilitate the co-researchers’ engagement in the research process, which thus becomes more empowering. Exploring the congruence of these methods with their professional ethos, health and care professionals can use their skills to develop them further. Both theory and practice examples are presented.     

Meeting the parenting skills needs of neglectful families by training child welfare workers as educators

A training program was devised for selected child welfare workers to conduct parent groups in the Missouri Neglect Demonstration Project. Welfare workers were trained to conduct parent groups that focused on parenting skills, self-advocacy, and social and economic resources. In contrast to case manager referrals, the workshops provided education directly and helped parents to develop resources. One of the goals was to have staff and parents collaborate to improve referral services and resources. The importance of this type of program was demonstrated by a literature review of parent trainings which found that: (a) few programs specifically addressed child neglect; (b) outcome evaluations of programs were scarce; and (c) a national extension study supported topics chosen.     

Teachers and health workers: partners in primary health care. Experiences from Papua New Guinea

Primary health care (PHC) involves community health education. When health priorities in rural communities are focused on the vulnerable under-5-years-of-age group then one has to examine who actually cares for this age group and what are the most appropriate means of reaching them through health education programs. In the context of rural communities in Papua New Guinea the linking of school and community health programs has been taking place. Examples and insights from programs where teachers and health workers attempted to find appropriate channels for integrating child and adult education in order to improve the health status of the very young child are described. The school programs used a child to child approach to develop in children a sense of shared responsibility with adults towards better health for themselves, younger children in their care and the environment of the community. The goal was a health program that applied to the whole community, where division between child and adult learning activities was not so sharply drawn, and where formal school programs and nonformal community education programs were to complement and contribute to each other. A campaign against infant diarrhea and death through dehydration was implemented. As a result of a 3-day planning workshop a program was drawn up for schools and communities. The workshop covered causes of diarrhea, fluid loss and dehydration, simple preventive and curative measures, essential hygiene habits and current community practices. Teachers, health workers and community leaders fashioned a program of activities for school children and adults. It was discovered that adults often feel a barrier between themselves and the child's school learning. Also, a gap often exists between what is taught in school and what is needed and can be applied to community health priorities. Thus, an effective community health education program that includes both children and adults in an integrated program will need to cover the varying ages and groups of community members who, with different degrees of responsibility, take care of themselves and others.     

Participating in community research: exploring the experiences of lay researchers in Bradford

Considerable attention has been given in recent years to the merits of involving community members in the research process and the resulting benefits in terms of research outcomes. Far less is known about the experiences of individuals taking on the role of lay researchers within their own community. This research investigates the experiences of six young Asian women who, following training, undertook a community health needs assessment in a neighbourhood in Bradford. Semi-structured interviews were conducted. Findings indicated that participating was overall a positive experience, having an impact on the women in two main ways. Firstly, a positive change in perception relating to their own capabilities and influence, resulting in increased confidence, self-esteem, and a greater understanding of the research process. Secondly, the women developed greater awareness of and interest in issues affecting their community coupled with greater empathy towards fellow residents, inspiring a determination to work towards achieving positive changes. However, the women expressed concerns that the needs assessment had raised expectations within the community and they would be held responsible for delivering change. Further research is recommended into the experiences of lay researchers, particularly the longer term impact of being involved both to themselves individually and the wider community.     

The participatory research approach in non‐Western countries: practical experiences from Central Asia and Zambia

This paper focuses on the application of the participatory research approach in non‐Western contexts. The aim is to provide critical insights into the participatory research discourse through an examination of its theory and practice based on our own experiences of using this approach in our doctoral research in five Central Asian countries and Zambia. Firstly, we summarise the published literature on the approach in both disability and development studies which are our academic disciplines. Secondly, we critically analyse some of the challenges we came across in applying participatory research in our doctoral studies in practice. By this we wish to contribute to making this approach more viable and to increase research participation by disabled persons in non‐Western contexts. Finally, based on our own experiences we give some suggestions for the use of the participatory research approach in non‐Western contexts.     

The training of nursery workers: the need for a new approach

SUMMARY. This paper sets out an argument for an approach to under fives provision which ignores the boundaries between care and education. It demonstrates an example of training, at South Bank Polytechnic in London, which attempts to overcome barriers to looking at children as whole individuals     

Effectiveness of problem solving skills in case management on return to work for workers with injuries

The present study aims to explore the case management model by using problem solving skills in assisting workers with injuries in returning to work. A total of five workers with injuries were enrolled and there were four stages during the whole case management process including a medical rehabilitation stage (stage I), a compensation stage (stage II), a return to work stage (stage III) and a follow-up stage (stage IV) respectively. Case managers provided services by using problem solving skills to tackle the problems which workers with injuries may encounter during all four stages. Outcome measurement showed one case return to the same company same job, two returns to different companies and different jobs, the others have self employed work. This study suggested that case management using the problem solving skills of occupational rehabilitation was beneficial to workers with injuries on return to work.