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儿童线粒体脑肌病14例临床观察及护理
引用本文:任尉华,王静,张静,吴亚楠,邹丽萍.儿童线粒体脑肌病14例临床观察及护理[J].齐鲁护理杂志,2011,17(10):1-2.
作者姓名:任尉华  王静  张静  吴亚楠  邹丽萍
作者单位:中国人民解放军总医院儿童医学中心,北京市,100853
基金项目:国家自然科学基金资助项目
摘    要:目的:观察线粒体脑肌病患儿的临床表现,进行相应的护理干预。方法:对14例患儿针对主要临床表现进行对症护理,包括抽搐、头痛、呕吐、意识障碍,针对患儿的情绪障碍、自伤倾向、认知障碍进行针对性护理,并对患儿家长进行健康教育、心理护理、康复训练指导。结果:经精心护理,患儿均未发生护理并发症,患儿家长能够保持平和心态,积极参与对患儿的照护。结论:儿童线粒体脑肌病临床表现复杂多样,护理难度大,积极、有效的护理干预是该病治疗成功的保障。

关 键 词:线粒体脑肌病  乳酸血症合并卒中样发作  肌阵挛性癫痫伴破碎红纤维  Leigh综合征  护理

Clinical observation and nursing care of 14 children patients with mitochondrial encephalomyopathy
Ren Wei-hua,Wang Jing,Zhang Jing,et al.Clinical observation and nursing care of 14 children patients with mitochondrial encephalomyopathy[J].Journal of Qilu Nursing,2011,17(10):1-2.
Authors:Ren Wei-hua  Wang Jing  Zhang Jing  
Affiliation:Ren Wei-hua,Wang Jing,Zhang Jing,et al(General Hospital of PLA,Beijing 100853,China)
Abstract:Objective: To observe the clinical manifestations of children patients with mitochondrial encephalomyopathy and conduct appropriate nursing intervention.Methods: The symptomatic nursing care was given to 14 children patients according to their clinical manifestations,such as convulsion,headache,vomiting and disturbance of consciousness.Meanwhile the targeted nursing care was applied to the patients in allusion to their mood disorders,tendency to self-injury and cognitive impairment.The parents of the childr...
Keywords:Mitochondrial encephalomyopathy  Mitochondrial encephalopathy lactic acidosis and stroke  Myoclonic epilepsy with ragged red fibers  Leigh syndrome  Nursing  
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